The Oregon Health Authority shall establish a uniform, statewide, population-based registry system for the collection of information determining the incidence of cancer and benign or borderline tumors of the brain and central nervous system and related data. The purpose of the registry is to provide information to design, target, monitor, facilitate and evaluate efforts to determine the causes or sources of cancer and benign or borderline tumors among the residents of this state and to reduce the burden of cancer and benign or borderline tumors in this state. Such efforts may include but are not limited to:
Targeting populations in need of cancer screening services or evaluating screening or other cancer control services;
Supporting the operation of hospital registries in monitoring and upgrading the care and the end results of treatment for cancer and benign or borderline tumors;
Investigating suspected clusters or excesses of cancer and benign or borderline tumors both in occupational settings and in the state’s environment generally;
Conducting studies to identify cancer hazards to the public health and cancer hazard remedies; and
Projecting the benefits or costs of alternative policies regarding the prevention or treatment of cancer and benign or borderline tumors.
The authority shall adopt rules necessary to carry out the purposes of ORS 432.510 (Cancer and tumor registry system) to 432.550 (Action for damages) and 432.900 (Civil penalty), including but not limited to designating which types of cancer and benign or borderline tumors of the brain and central nervous system are reportable to the statewide registry, the data to be reported, the data reporting standards and format and the effective date after which reporting by health care facilities, clinical laboratories and practitioners shall be required. When adopting rules under this subsection, the authority shall, to the greatest extent practicable, conform the rules to the standards and procedures established by the American College of Surgeons Commission on Cancer, with the goal of achieving uniformity in the collection and reporting of data.
The authority shall:
Conduct a program of epidemiologic analyses of registry data collected under subsection (1) of this section to assess control, prevention, treatment and causation of cancer and benign or borderline tumors in this state; and
Utilize the data to promote, facilitate and evaluate programs designed to reduce the burden of cancer and benign or borderline tumors among the residents of Oregon.
The authority shall:
Collaborate in studies of cancer and benign or borderline tumors with clinicians and epidemiologists and publish reports on the results of such studies; and
Cooperate with the National Institutes of Health and the Centers for Disease Control and Prevention in providing incidence data for cancer and benign or borderline tumors.
The authority shall establish a training program for the personnel of participating health care facilities and a quality control program for data for cancer and benign or borderline tumors reported to the state registry.
The authority may contract with a public or private third party to:
Operate or maintain the statewide registry; and
Fulfill the authority’s duties under subsections (3) to (5) of this section. [1995 c.585 §2; 2003 c.269 §2; 2007 c.71 §121; 2009 c.595 §619; 2017 c.101 §36; 2018 c.98 §13; 2019 c.456 §29]Note: See note under 432.500 (Definitions).