OAR 333-025-0155
Retention of Genetic Information for the Purpose of Newborn Screening Procedures

333–025–0100
Definitions 333–025–0105
Scope 333–025–0110
Institutional Review Boards (IRBs) and Approval for Research 333–025–0115
Informed Consent for Non-Exempt Genetic Research 333–025–0120
Anonymous, Coded, or Exempt Genetic Research 333–025–0125
IRB Registry 333–025–0130
Recontact 333–025–0135
Information Concerning Deceased Individuals 333–025–0140
Informed Consent Procedures for Obtaining Genetic Information 333–025–0145
Retention of Genetic Information for the Purpose of Identification of Deceased Individuals 333–025–0150
Retention of Genetic Information for the Purpose of Testing to Benefit Blood Relatives of Deceased Individuals 333–025–0155
Retention of Genetic Information for the Purpose of Newborn Screening Procedures 333–025–0160
Disclosure of Genetic Information: Procedure for Authorization of Disclosure by the Tested Individual or the Tested Individual’s Representative 333–025–0165
Disclosure of Genetic Information: Provider Notification and Opt Out