Oregon Oregon Health Authority, Public Health Division
Disclosure of Genetic Information: Procedure for Authorization of Disclosure by the Tested Individual or the Tested Individual’s Representative
Except as provided in ORS 192.539 (Disclosure of genetic information), and except for research disclosures authorized by an Institutional Review Board in accordance with these rules, any person shall be required to obtain specific authorization from the individual on whose sample a genetic test was conducted, or an individual’s representative, to disclose genetic information, by completing the consent form specified in ORS 192.566 (Authorization form), or a form that is substantively similar and by using the following procedure:
Request that the tested individual, or his/her representative, read, sign and date the prescribed consent form; and
Read, sign, and date the prescribed consent form on behalf of the individual or organization requesting the release of genetic information; and
Provide the tested individual, or his/her representative, with a copy of the completed consent form for his/her personal records.